I recently took
Simon and David with me to visit my undergraduate college, Western Carolina
University. I’d taken Simon once before but that was during Winter Break so
there were approximately two other people around. I’ve been promising to take
him back when there would be lots of “college kids” (he latched onto that right
away), and last week was a good time. Simon got much more out of the experience
than David, as David was strapped in his stroller the whole time. Simon got to
strip off his shirt and play around in this big fountain that was not there
when I was a student, one of the guys from the fountain let Simon have a turn
at his devil sticks (he was great, after a couple of tries he set it up so
Simon would be successful – I could’ve hugged him) (the guy) (and Simon). And
he got lots of compliments on his new “Avengers” backpack – the college kids
all called it his bookbag, so he has started saying that too J.
I posted a
photo of Simon in the fountain on facebook, describing him as my “half-naked
future Catamount.” I also reported that David is a future Catamount too – last
year my alumni magazine did a feature on a young man with Down syndrome, who is
a student there. I don’t remember
what he was studying – we kept the magazine for a long time but it’s currently
MIA. I heard a story on NPR last year that reported more and more young adults
with Down syndrome are attending “regular” college, not simply being routed to
vocational training programs. But they also said it’s difficult for them to get
student loans – I suppose that while it’s, you know, nice for someone like
David to go to college, his earning potential is probably still going to be
pretty low, and I get that. But good grief how many people take a long time to
pay back their loans because they can’t find a decent job right out of school?
One campus
where David is succeeding tremendously (and the tuition is reasonable) is his
Mother’s Morning Out program at our church. I was a little late in dropping him
off one day last week, and the director and other staff person reported that
several of the other kids had asked, “Is David coming today? When is David
going to get here?” One of the little girls has especially latched onto him,
and there are a couple of dads who know him. The director was mentioning the
above questions to me in front of one of these dads, and she said the one
little girl “really loves David.” The dad responded, “Oh, everyone loves
David.”
(Here’s the
over-thinking part) (a) I’m wondering to what degree, if any, the other little
kids in MMO have detected something … unique … about David (I am loath to use
the word ‘special’ but I suppose that’ll happen sometime). The program is for
kids age 1 to 4, and Simon asked a few questions about why David was not
walking when he (Simon) was 4, so I guess it’s possible. Aside from the basic
idea of Down syndrome and understanding all the implications thereof, do any of
them sense something (omg) special about him?
(b) A
frequently-heard phrase about people with Down syndrome is, “They’re so sweet
and loving.” And I will admit to a touch of this thinking, myself, when we
initially got David’s diagnosis. Matt and I have discussed this several times,
and have both said we do want David to be known for his overall sweetness and
wonderful disposition, but that people not really attibute it to his Down
syndrome – we prefer to believe he’d be as cute/sweet/adorable even if he
didn’t have it. As Matt pointed out, it’d be impossible to separate it out –
it’s not as if he was grumpy up until age 12, then he got Down syndrome and
after that he was sweet? I suppose in the vein of Not Overthinking, we can just
concentrate on the fact that he is incredibly sweet, loving and loveable, and
everyone he meets does seem to love him. Maybe we won’t worry about chicken-and-egg,
cause-vs-effect, quite so much.
One thing that a seminary professor of mine said that has really stuck with me is that people with disabilities are not LESS human than the rest of us; in fact they make the rest of MORE human than we would have been otherwise. I think people love David sincerely, and through loving him they feel more lovable themselves.
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